We serve two distinct yet deeply interconnected communities: families of children with developmental and epileptic encephalopathies (DEEs)—conditions that affect approximately 1 in 600 newborns—and those facing the challenges of ultra-rare SCN8A-related disorders, which have less than 1,000 diagnosed cases worldwide. Many individuals with SCN8A-related disorders also experience DEE, underscoring the connection between our core focus areas. We fulfill our mission through three key programs, each designed to address the unique needs of these communities. For more detailed information, we invite you to explore our programs below.